Our Symposium at #IASSID2012 on July 10 2012 at International Association for the Scientific Study of Intellectual Disabilities

And so we go to … #IASSID2012 International Association for the Scientific Study of Intellectual Disabilities Halifax, Canada – on Tuesday 10th July 2.30-3.30pm

Symposium: Health communication: Participation of people with I/DD in hospital settings [Chair: Bronwyn Hemsley, The University of Newcastle]

  1. People with I/DD communicating in hospital: Needs and experiences reveal barriers and facilitators to better communication (Bronwyn Hemsley, The University of Newcastle)
  2. Communicative interactions in hospital for people with little or no functional speech: A Norwegian perspective (Susan Balandin, University College, Molde, Norway)
  3. ICF as an organizational framework for collaborative efforts related to AAC (Charity Rowland, Oregon Health Sciences University, Portland Oregon)


People with I/DD have high health service utilization rates and frequently encounter barriers to effective communication in health settings.  Problems in communicating basic care needs and information to staff impacts negatively upon their healthcare experiences, satisfaction, and patient safety.  In this symposium we will present the results of recent research conducted across three continents examining:

INTRO – Bronwyn – 5 minutes (Very brief – ICF, definitions, populations)

(a) perceptions of key stakeholders on the use of AAC in hospital and their views on the potential for collaboration to improve communication,

SUE (15 minutes): Can give overview of research in Australia and Norway that has both published results on the problem, and new data on the issues from the perspective of communication partners (nurses) in the setting, including absence of info on disability in training etc etc Australian results also have views of paid carers, adults with CCN, family carers etc – all converging to problems relating not only to the person but to their communication partners and the context,setting, time, collaboration, etc. Roles of paid and family carers will be explored.

(b) factors within the hospital environment impacting upon communicative interactions for children and adults with I/DD with little or no speech, and

BRONWYN (15 minutes): Can give results coming in relating to the ICF and observations of adults with Intellectual Disability and CCN, and CP and CCN – in hospital. Also outline study on use of the ICF in developing a code set on 75 other studies intervening for patients with communication vulnerability (ie the broader population of people with difficulties communicating) in progress.

(c) a purposefully selected core set of communication-related factors in the ICF-CY

CHARITY (15 minutes): Presenting on children who use AAC in the school setting and studies relating to the Code Set within ICF-CY.


Bronwyn (5 minutes)

The ICF / ICF-CY as a collaborative tool to guide assessment and intervention goals in the healthcare setting, and future research.

Factors affecting preparation for hospitalisation and use of generic or customised AAC systems to improve communication. Directions for future research and design of interventions for improving communication in hospital for people with I/DD will also be discussed.


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